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I pretty much breezed through my first 2 treatments, but boy the 3rd has really knocked me for a loop.

Betti A Profile
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anonymous

Survivor since 2013 almost 7 years
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  • Lou Cam Profile
    anonymous
    Survivor since 2013
    Betti, I am so sorry you are having trouble with your arm. Please let us know how the ultrasound went. You are such an inspiration with how you handle every thing that comes your way. I follow along your journey and hope the best for you
    almost 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Survivor since 2012
    I did the same. The rest of my treatment was ROUGH. I know it's hard to fight when you're not feeling good, but you have to keep thinking positive. You won't feel bad forever and you will make it through. Get plenty of rest and drink lots of fluid. It helps flush the poison out of your body. I also took lots of warm baths. That made me feel a little better. Good luck and keep pushing through!!
    almost 7 years Comment Flag
  • Betti A Profile
    anonymous
    Survivor since 2013
    cont--I didn't have any real issues with my first 2 treatments of a TC regimen. But the third 1 on Monday really has kicked me big time. It started at the end of my infusion when the nurse was doing my vitals; while the BP cuff was inflating my upper arm got really hot. After she took the cuff off my lower arm was red, hot to the touch (through her gloves), and looked swollen. They had the onc. come over and look at it. When I stood and brought my arm down by my side the redness increased and when the arm was raised it went away. He had never seen anything quite like it and the infusion went through a port and not an arm vein. He wondered if I may need an U/S to rule out a blood clot. I was told to watch it and let them know if anything new developed. That evening I took my bedtime BP like I always do and the same thing occurred but not quite as pronounced. I called and talked with an oncall onc. who told me not to take my BP for now. I went in the next day for my Neulasta shot and they felt it was still somewhat there but not as bad. The charge nurse was in contact with the onc. I saw the day before while I was there. He never contacted her back so she sent me home and said she'd call me. Well, she never called me back. On Wed. I took a little something to my breast patient navigator and she asked me how my arm was as I had emailed her about it. I told her the clinic never called me back so she sent them a text to call me. I had just put my supper in the microwave when the phone rang; it wasn't the clinic but the hospital saying they had an order for me to schedule an U/S which I'm doing today. It's not on the side where my mastectomy was so no one is sure what is going on if anything and like I said my infusions go through a port. I slept with it on a pillow last night but don't think it's swollen, at least as near as I can tell. I guess I'll just have to await the U/S results and see where I go from here. I still have 1 treatment left, a little over 2 weeks from now and don't need any problems and one especially the nurses and onc. say they've never seen. I told them I guess I need to be different.
    almost 7 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Betti,
      I wish I had a magical answer for you but if the onc. is stumped, my guesses would be just that.....guesses. I want to tell you how much I am cheering you on for your persistance in getting an answer. I have seen so many women put up with...

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      Betti,
      I wish I had a magical answer for you but if the onc. is stumped, my guesses would be just that.....guesses. I want to tell you how much I am cheering you on for your persistance in getting an answer. I have seen so many women put up with things, they should be addressing. You did a good job being your own best advocate. Do not be afraid to persue something if you don't get an answer back from your doctor or office. I sure hope they find out the reason for this swelling. It sure does sounds like some kind of interuption in circulation. BUMMER! Hang in there darlin.
      At your next infusion.... before they start, I would want to question the onc. If your exam does not give you an answer, I might be pushing them for a real answer. Take care, Sharon

      almost 7 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      Thanks Sharon, I appreciate it. I always see the onc. before my infusions so they can go over the blood work that is drawn when they access the port. My regular onc. was out of town this time around so I saw one of her associates and they say...

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      Thanks Sharon, I appreciate it. I always see the onc. before my infusions so they can go over the blood work that is drawn when they access the port. My regular onc. was out of town this time around so I saw one of her associates and they say he's very good too so I'm OK that way. I worked in healthcare and know it's important to let someone know if things don't feel right because one truly never knows.

      almost 7 years Flag
    • sharon s Profile
      anonymous
      Learning About Breast Cancer

      Just a guess that the lymph system is sending you toward Lymphederma. I get the cording but not the swelling. And I'm not sure that any arm should be hot to the touch. That sounds like Lymphederma and infection.

      The National Lymphederma network...

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      Just a guess that the lymph system is sending you toward Lymphederma. I get the cording but not the swelling. And I'm not sure that any arm should be hot to the touch. That sounds like Lymphederma and infection.

      The National Lymphederma network might be interesting for you if you continue to have arm problems. Sounds like it is only one side and where lymphs were removed. Extra fluid is hard for the arm to move. Anyway, I just ordered a medical alert bracelet for my left arm. No Bp no needles It arrived two days later with about ten pages of information or resources.

      almost 7 years Flag
    • jayme john Profile
      anonymous
      Learning About Breast Cancer

      It must be a bit scary not knowing what it is but you sound really courageous. It's weird how each of our bodies reacts differently to chemo. I'm glad you were persistant about getting an answer. I'm one year out and there are still some residue...

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      It must be a bit scary not knowing what it is but you sound really courageous. It's weird how each of our bodies reacts differently to chemo. I'm glad you were persistant about getting an answer. I'm one year out and there are still some residue chemo related things I deal with. I hope you find out what going on from the US. Take care...hugs

      almost 7 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      The ultrasound of my right arm was negative for any clots, thank you God.

      almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      Betti, what good news that it is not a clot. If you find out what is causing it I am curious to know . What is so unusual is that it is on the side without the surgery.

      almost 7 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      The only possible explaination was something must have gotten temporarily pinched off but by what I don't know since like I said we aren't using an arm vein but a port. I'll query them before my next treatment as I'll be seeing my regular onc....

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      The only possible explaination was something must have gotten temporarily pinched off but by what I don't know since like I said we aren't using an arm vein but a port. I'll query them before my next treatment as I'll be seeing my regular onc. again.

      almost 7 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm definitely feeling much better today. Yesterday was pretty much a blah day but today is a new day and a day for looking forward to 1 more treatment and having this portion of my journey behind me. It' not like I was being negative yesterday,...

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      I'm definitely feeling much better today. Yesterday was pretty much a blah day but today is a new day and a day for looking forward to 1 more treatment and having this portion of my journey behind me. It' not like I was being negative yesterday, just felt out of sorts.

      almost 7 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      I forgot to mention that the ultrasound was negative for blood clot(s), thank goodness. The past 2 days I've done my BP without any issues so still am baffled like the onc. and nurses as to the cause.

      almost 7 years Flag

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