Survivor since 2013
cont--I didn't have any real issues with my first 2 treatments of a TC regimen. But the third 1 on Monday really has kicked me big time. It started at the end of my infusion when the nurse was doing my vitals; while the BP cuff was inflating my upper arm got really hot. After she took the cuff off my lower arm was red, hot to the touch (through her gloves), and looked swollen. They had the onc. come over and look at it. When I stood and brought my arm down by my side the redness increased and when the arm was raised it went away. He had never seen anything quite like it and the infusion went through a port and not an arm vein. He wondered if I may need an U/S to rule out a blood clot. I was told to watch it and let them know if anything new developed. That evening I took my bedtime BP like I always do and the same thing occurred but not quite as pronounced. I called and talked with an oncall onc. who told me not to take my BP for now. I went in the next day for my Neulasta shot and they felt it was still somewhat there but not as bad. The charge nurse was in contact with the onc. I saw the day before while I was there. He never contacted her back so she sent me home and said she'd call me. Well, she never called me back. On Wed. I took a little something to my breast patient navigator and she asked me how my arm was as I had emailed her about it. I told her the clinic never called me back so she sent them a text to call me. I had just put my supper in the microwave when the phone rang; it wasn't the clinic but the hospital saying they had an order for me to schedule an U/S which I'm doing today. It's not on the side where my mastectomy was so no one is sure what is going on if anything and like I said my infusions go through a port. I slept with it on a pillow last night but don't think it's swollen, at least as near as I can tell. I guess I'll just have to await the U/S results and see where I go from here. I still have 1 treatment left, a little over 2 weeks from now and don't need any problems and one especially the nurses and onc. say they've never seen. I told them I guess I need to be different.