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I am scheduled for surgery this Friday . I was diagnosed, one week ago with DCIS stage 0. Is a mastectomy a good choice?

Carole Fanelli Profile
Asked by

anonymous

Learning About Breast Cancer over 7 years
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  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Carole, You usually get about 3 chances for clear margins. A friend of mine just completed treatment for the same type of breast cancer. It ended up she had to have a mastectomy because it was found to be like pepper sprinkled throughout her breast. She had reconstruction and is back to her old self again. It is difficult to recommend what would be the best for you because we aren't your doctor with the knowledge of your test results and spread of your disease. DSIC, can be throughout your breast and mastectomy may the sure way of getting it all. Talk to your surgeon. Big hugs, Sharon
    over 7 years Flag
    • Carole Fanelli Profile
      anonymous
      Learning About Breast Cancer

      Thank you, Sharon, for sharing the good news about your friend, and for the comment about the 3 margins. I have finally stopped trying to figure out all the answers, and just take it one day at a time. I will know probably more than I want to,...

      more

      Thank you, Sharon, for sharing the good news about your friend, and for the comment about the 3 margins. I have finally stopped trying to figure out all the answers, and just take it one day at a time. I will know probably more than I want to, after we get the result from the pathologist.
      Thank you for the hugs......Carole

      over 7 years Flag
    • Yashmira Devine Profile
      anonymous
      Stage 1 Patient

      Hi Carole,

      I was diagnosed with DCIS on 8/13/12 of this year, I knew I had something as soon as the radiologist said the mammogram had to be redone because they found something suspicious. When I met with my surgeon, she give me several options,...

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      Hi Carole,

      I was diagnosed with DCIS on 8/13/12 of this year, I knew I had something as soon as the radiologist said the mammogram had to be redone because they found something suspicious. When I met with my surgeon, she give me several options, but definitely not a lumpectomy. She said that the DCIS was spread throughout my right breast and a lumpectomy was out of the question if I wanted all the cancer out. The options began with a Right breast mastectomy and taking tamoxifin for 5 years. The Tamoxifin is to help prevent the cancer from returning or occurring in the left breast and although there was no DCIS in the left there was something that they had found that they would have to OBSERVE. The second option was having a bilateral mastectomy. I went with the bilateral, I'm 37 years old and I have a 2 year beautiful baby boy, a wonderful husband and I still want to have another baby if possible. I was too scared to take the tamaxifin for 5 years because I would NOT be able to get pregnant.
      I had surgery on 9/4 and very glad I had the bilateral mastectomy because during the surgery the DCIS went into basically invasive mode as opposed to in situ.
      Like Sharon, I cannot tell you which is the best option for you but I do wish you the VERY VEST OF LUCK and whatever decision you make, will be the best for you.
      GOOD LUCK, Yashmira

      over 7 years Flag
  • jen sou Profile
    anonymous
    Stage 3A Patient
    I would get a lumpectomy unless you carry the brca gene. If it is idc stage 0, its contained in the duct, much easier to treat. I have stage 3 idc and I got a lumpectomy.
    over 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Survivor since 2012
    Why not a lumpectomy?
    over 7 years Flag
    • Carole Fanelli Profile
      anonymous
      Learning About Breast Cancer

      The lumpectomy is scheduled for Friday, I guess I didn't word this the right way...still a bit fuzzy about it all. If the margins come back positive, would the mastectomy then be the next step?

      over 7 years Flag
    • Thumb avatar default
      anonymous
      Survivor since 2012

      Some women elect for another try at lumpectomy but I told my surgeon to go with the mastectomy after the first try. I went in for a lumpectomy and ended up with a partial mastectomy with clear margins and clear nodes . Good luck.

      over 7 years Flag
    • Carole Fanelli Profile
      anonymous
      Learning About Breast Cancer

      Thank you, and I glad to hear that your doing so well. I think when it's all said and done, I will probably end up with the partial mastectomy, as well. At least, that's what I'm hoping for.

      over 7 years Flag
  • Elizabeth Castro Profile
    anonymous
    Survivor since 2012
    Mine was DCIS before surgery & I had to have a mastectomy because my calcification was all the way to my nipple & there was no way to save the breast. After surgery I was upgraded to stage 1 b/c they found cancer cells outside of the milk ducts. I had clear margins & negative lymph nodes. No chemo/radiation just tamoxifen for the next 5 yrs. good luck & I'll be praying for good news!
    over 7 years Flag
    • Carole Fanelli Profile
      anonymous
      Learning About Breast Cancer

      Thank you, Elizabeth,
      My cells are located in the same area, I will lose the nipple,and the areola. I was advised that I would need low dose radiation for 7 weeks, and then a medical oncologist will be the next step. thank you for your...

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      Thank you, Elizabeth,
      My cells are located in the same area, I will lose the nipple,and the areola. I was advised that I would need low dose radiation for 7 weeks, and then a medical oncologist will be the next step. thank you for your prayers, and I'm so glad that your ordeal is over. Thank God for all the new technology that is in place to save our lives.
      Love,
      Carole

      over 7 years Flag
  • Deborah Ethridge Profile
    anonymous
    Stage 0 Patient
    Carole - I am also DCIS stage 0. I was diagnosed in May and had a bilateral mastectomy in June with tissue expanders placed at the same time. I also had calcifications throughout both breasts. My case was presented before the Tumor Board and the recommendation was for the bilateral because of all of the calcifications. My margins were clear and all lymph nodes were cancer free. I have never once regretted my decision. I am now waiting to have my tissue expanders removed and permanent implants placed. Recovery has been relatively smooth for me with very little pain. I hope you can make the best decision for yourself and that you feel good about whatever path you choose to take on your journey. Many blessings to you.
    over 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I agree. Why not lumpectomy & radiation treatment after. In quite about your options.
    over 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    Inquire about your options.
    over 7 years Comment Flag
  • nicola thomas Profile
    anonymous
    Stage 2A Patient
    Is that ur decision ?? Again like the rest I would prob go for lumpectomy
    over 7 years Comment Flag
  • Samantha Perez Profile
    anonymous
    Learning About Breast Cancer
    Hello Carole, I was diagnosed over a year ago with stage 0-1 DCIS in my right breast. I had a lumpectomy which was followed by radiation therapy. I was told to take Tamoxifen for the next five years to give me a 2% higher chance of survival. I opted out since my survival rate was already considerable without the nasty side effects of the wonder drug. It's one year later and now I'm facing a possible recurrence. I have three new cysts in my left breast (originally unaffected) with a couple of big fibrous areas carrying new calcifications. I will have aspirations and biopsies tomorrow with test results on Friday. I'm giving you insight into my story because I have no family history of breast cancer and I was diagnosed at the age of 39. After much thought and discussion, with my doctor and family, I am deciding on a double mastectomy but I will know better on Friday. Why am I leaning toward a mastectomy? I don't want to continue looking over my shoulder worrying if it's back once a year or even every three years if that would be the case. By the way, my insurance company refused to cover the cost or even partial cost of genetic testing so I don't know if it's genetic and what type of carrier I am. I'd rather be without these "killer" boobs, then to continue having biopsy after painful biopsy time and time again. Radiation therapy was no fun for me either. I was one of the lucky small percentage that gets bad side effects from it. This is just "my story" and if I had to do it all over again, I would have had the darn mastectomy from day one! I wish you the very best as well as everyone on this site and all over the world dealing with cancer of every type. Do your research. Ask your questions. Get opinions from doctors with all your options. Speak to women who have been there done that. And lastly....make your own decision. Most importantly, allow your loved ones to be your pillars because you cannot and should not walk this path alone. Good luck!
    over 7 years Flag
    • Carole Fanelli Profile
      anonymous
      Learning About Breast Cancer

      Dear Samantha,
      My prayers and thoughts will be with you tomorrow. God will be with you during this new trial.
      I appreciate your sharing this with me and am considering my options, as I write this.
      There is no breast cancer in my family,...

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      Dear Samantha,
      My prayers and thoughts will be with you tomorrow. God will be with you during this new trial.
      I appreciate your sharing this with me and am considering my options, as I write this.
      There is no breast cancer in my family, either, this really blind sided me, and I refuse to be in that position again.
      I am learning all that my head can hold, without going completely nuts, and looking into new treatments and therapies.
      I'm much older than you and the Tamoxifen isn't an option, after radiation. so, I'm just taking it one day at a time, seeing where this may lead.
      I have the radiation seeds, implanted on Thursday, and the surgery on Friday. After that, it's in God's hands and the Pathologist's.
      I'm hoping for good results and clean margins.
      Good luck and I will certainly be thinking of you and praying that this is just a minor bump in your road to a long and happy life.
      God Bless,
      Carole

      over 7 years Flag
  • Thumb avatar default
    anonymous
    Survivor since 2012
    Why not a lumpectomy?
    over 7 years Comment Flag

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