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Any other DES daughters ? Shocked to find out risk of bc is 2 X for women over 40, and higher for women over 50 . (Diethylstilbestrol , synthetic estrogen given to pregnant women between 1940 & 1971)

Lou Cam Profile
Asked by

anonymous

Survivor since 2013 almost 7 years
 
  • Life is Good! Profile
    anonymous
    Survivor since 2003
    Yes, I am a DES daughter! Born in 1958, had a ridge/hood around my cervix, 2 miscarriages, preeclamsia, incompetent cervix, and diagnosed with bc in 2003. All are devastating side effects of the drug. If you would like, you are welcome to e-mail me at micbrady5@gmail.com to communicate privately. Thanks for bringing attention to the risk factor to women!
    almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      I was born in 1956. Have had problems with dysphasia since I was teen with multiple procedures. Now I have stenosis of the cervix ..benign neoplasms. Had high risk pregnancies , in which labor would not progress , placenta Previa , bed rest, and a...

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      I was born in 1956. Have had problems with dysphasia since I was teen with multiple procedures. Now I have stenosis of the cervix ..benign neoplasms. Had high risk pregnancies , in which labor would not progress , placenta Previa , bed rest, and a full term baby girl who died while I was in labor.i have never gotten over that loss. Thank you for your email, I would like to talk more about this

      almost 7 years Flag
    • Life is Good! Profile
      anonymous
      Survivor since 2003

      God bless you! You have been through a lot. I will email my phone number to you and would love to talk with you. Take care.

      almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      The last two days my comments would not post, so I'm trying again

      almost 7 years Flag
  • Jill Carey Profile
    anonymous
    Learning About Breast Cancer
    im a des daugher! born 1970, im 42, just finished radiation for stage 1, no lymph involvement. now they want me to get total hysterectomy...help
    almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      It's really terrible that they continued to give this drug for so many years. Long before it was given to your mother, it was proven in a double blind study that it did not prevent miscarriage . I'm so sorry that you have to have a hysterectomy....

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      It's really terrible that they continued to give this drug for so many years. Long before it was given to your mother, it was proven in a double blind study that it did not prevent miscarriage . I'm so sorry that you have to have a hysterectomy. Last year I thought that I was going to have one, but I went to a GYN oncologist and he was able to do a D&C, and all was ok.Good luck with this and with your bc.

      almost 7 years Flag
    • Life is Good! Profile
      anonymous
      Survivor since 2003

      You are right. DES had no benefit and the drug companies knew it would cause problems with our reproductive system. I will not let this rob me of the joy in life but hope that it never happens to anyone again.

      almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      I agree. Have you ever had genetic testing. Des can change DNA and I wondered if I should have genetic testing

      almost 7 years Flag
    • Jill Carey Profile
      anonymous
      Learning About Breast Cancer

      i did have dna testing, showed no family history, btw, insurance did not cover it! $400 they will have to wait for!! how does des change dna?

      almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      It can change DNA in the developing baby, effecting genes. This is why grandchildren are being studied, because it is possible for these changes to be inherited. My own daughter has already had dysplasia , so I'm concerned. I'm glad that you had...

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      It can change DNA in the developing baby, effecting genes. This is why grandchildren are being studied, because it is possible for these changes to be inherited. My own daughter has already had dysplasia , so I'm concerned. I'm glad that you had testing. Do you think that this type of mutation would be picked up on the testing for BRC ?

      almost 7 years Flag
  • anonymous Profile
    anonymous
    Learning About Breast Cancer
    Lou, not sure if I'm a DES daughter but my mom was given a shot to prevent her miscarrying me as she had had several before. When she asked the dr years later, he yelled at her and stormed out of the room. I'm 46 and am the only one in my family with bc. Coincidence? I don't think so.
    almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      It was given in shots , pills, and suppositorie s to prevent miscarriage. The risk of a rare cancer of the cervix and vagina is 40 X women who were not exposed. A large study has been done by several major cancer centers for at least 20 years....

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      It was given in shots , pills, and suppositorie s to prevent miscarriage. The risk of a rare cancer of the cervix and vagina is 40 X women who were not exposed. A large study has been done by several major cancer centers for at least 20 years. So they saw the the increase in breast cancer as the Des daughters started getting older. You are twice as likely to get bc, which is the same risk as having a mother with breast cancer. At age 50 the risk is 3 X greater. I found all of this out accidently last night when I was trying to find the risks of chemo drugs. All of my problems since I was a teenager have been dysphasia of the cervix. I didn't know about bc risk.

      almost 7 years Flag
  • Betti A Profile
    anonymous
    Survivor since 2013
    My late mother had a stillborn and I'm thinking 2 miscarriages before I was born. She was given something but I never found out exactly what before she passed away in '94. I know now I will never be able to find out what she was given but being diagnosed in Jan. '13 at age 62 it makes me wonder.
    almost 7 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      Betti, des was what was given for that. Maybe that's why so many of us have bc. And I'm not planning in suing, but several lawsuits have been won against the drug manufactures. In a family of 5 girls, the mother took DES with 4 of the girls. They...

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      Betti, des was what was given for that. Maybe that's why so many of us have bc. And I'm not planning in suing, but several lawsuits have been won against the drug manufactures. In a family of 5 girls, the mother took DES with 4 of the girls. They all have bc. The 5th daughter was not exposed, and does not have cancer. The 4 sisters recently won a lawsuit.

      almost 7 years Flag

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