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    View real video stories from people that have been diagnosed, received treatment, and survived breast cancer.

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  • Leslieanne  S Profile

    I was diagnosed with Stage 3 They are doing the strongest chemo The red Devil.I just got a ultrasound and tumors haven’t shrunk.My friend who is a nurse says chemo shrinks tumors.It is killing you But not doing what it’s meant Thinking of refusing last

    Asked by anonymous

    Learning About Breast Cancer
    about 5 hours 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you discussed this with your team? I know one wants to give up but perhaps there is something else that can be used. Take care of yourself.

      Comment
    • Leslieanne  S Profile
      anonymous
      Learning About Breast Cancer

      I just want to add my last week side effects were so bad I couldn’t walk on my feet they were callused and Enflamed.I just don’t see the point in continuing a plan that’s bit working.I am going to Taxol next Hopefully that will work

      Comment
  • Ailene L Profile

    Got results of 2nd biopsy, NON-cancerous papilloma. Surgeon advises lumpectomy of DCIS area and this papilloma followed by radiation. Can anyone share lumpectomy and radiation experience? How long was recovery? How much did your breast change? Any advise?

    Asked by anonymous

    stage_0 Patient
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I had lumpectomy & 35 radiation treatments in 2012. My lumpectomy did not effect my breast shape to much but everyone's cancer is different. My recovery was super easy but my margins weren't clear & I had to have a 2nd surgery 5 days after the 1st. Radiation started a month an 1/2 later because...

      more

      I had lumpectomy & 35 radiation treatments in 2012. My lumpectomy did not effect my breast shape to much but everyone's cancer is different. My recovery was super easy but my margins weren't clear & I had to have a 2nd surgery 5 days after the 1st. Radiation started a month an 1/2 later because your incision has to heal before radiation can be done. The whole process took 5 months but I stayed out of work for a year. Some women go back to work shortly after surgery & work through radiation treatments. I had no radiation side effects other than a sun burn & that went away after treatments stopped.

      Comment
    • Penny Timson Profile
      anonymous
      stage_2a Patient

      I had lumpectomy....no change to the look of my breast. I also had intraoperative radiation which means radiation is done at the time of surgery. Recovery wasn't bad at all.

      Comment
  • Victoria Fermin  Profile

    Ho all my hisyology report came back negative to all adjuvant test , all my 24 lymph nodes negative , my surgical margin negative for tumor ( up to 7mm away) lymphovascular invasion Absent but Dcis is present , that is the type of cancer her2triplenegsti

    Asked by anonymous

    Patient
    3 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      It sounds like you need to be sitting down and discussing your case with your doctor(s). Everyone's cancer is unique to them so I am guessing there is some reason they want you to have chemo. If you're not comfortable with what is being said then make an appointment for a 2nd opinion.

      Comment
    • Victoria Fermin  Profile
      anonymous
      Patient

      Progesterone negative but after all that they suggested chemo still aboit 6 sessions , should I take or not take , for me I don't want to seeing all my test is negative y do chemo to create some that is not there.

      Comment
  • Thumb avatar default

    I was told, after having an ultrasound, that I have dilated ducts under my nipple/areola area. I’ve been having some pain, and warm sensations in my breast, but no discharge. Can ductal carcinoma present in this manner, without any nipple discharge?

    Asked by anonymous

    Learning About Breast Cancer
    3 days 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      That sounds like something you need to be asking your doctor about and we aren't doctors on this site. I'm guessing there could be other issues causing the dilated ducts other than cancer.

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Thanks. I’ve been referred to a breast surgeon.

      Comment
  • Lindsay LAW Profile

    I have been recently diagnosed, what comes first? Chemo, surgery, radiation? I'm told I need all of it but not in what order I will get it.

    Asked by anonymous

    Learning About Breast Cancer
    5 days 6 answers
    • View all 6 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Everyone's cancer is unique to them so treatment plans are individualized for each person. My Onc. wanted me to have some chemo. prior to surgery but my Surgeon nixed it. I had surgery, chemo, rads., and am now on a hormone blocker since my tumor was Er/Pr+.

      Comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      Lindsay,
      Your doctors should be explaining your treatment timeline. Every cancer is different, and treatment schedules are also different. I'm sure you have consults scheduled, and all should be made clear. Write questions down so you don't forget something. It also helps to take someone...

      more

      Lindsay,
      Your doctors should be explaining your treatment timeline. Every cancer is different, and treatment schedules are also different. I'm sure you have consults scheduled, and all should be made clear. Write questions down so you don't forget something. It also helps to take someone with you to write down all information given. It can be overwhelming, and you may not remember everything. Good luck

      Comment
  • Ailene L Profile

    Trying to decide whether to have reconstructive surgery after planned mastectomy. Any good articles, books, or resources suggested? I’d appreciate thoughts from those that had reconstruction.

    Asked by anonymous

    stage_0 Patient
    6 days 7 answers
    • View all 7 answers
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I also had a double mastectomy
      w/immediate reconstruction. It made more sense than having to come back 4 a 2nd surgery. Yes it hurt like crap because expanders were inserted & filled with 20cc of saline but I said what doesn't kill me will only make me stronger. My Dr filled them @ 40cc each...

      more

      I also had a double mastectomy
      w/immediate reconstruction. It made more sense than having to come back 4 a 2nd surgery. Yes it hurt like crap because expanders were inserted & filled with 20cc of saline but I said what doesn't kill me will only make me stronger. My Dr filled them @ 40cc each visit to relieve the skin stretch pain until I reached a 34b my original cup size. I had a 2nd surgery to remove the expanders & put in the implants. You choose between silicon & saline implants only diff is 1 is softer than the other. You speak to your Dr about the size you want. I had my nipples removed & tattooed back on. Yes my breast have no feeling but they look great & my husband doesn't care as long as I'm alive. You will have drains inserted into your chest walls but they weren't a problem & my hospital gave me awesome bras to hold the drains. The scars are fading & I sometimes feel uncomfortable because they're not like my original breast but @ the end of the day I'm 5 years still living & very happy. Live Love Life.

      1 comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      Hello Aliene,
      I had a bilateral mastectomy with immediate reconstruction. I could not be happier with the outcome. The new "breasts" are small, only so much skin to go around. They fill out my clothes, and I never have to wear a bra again! Keep in mind they have no feeling, and they could...

      more

      Hello Aliene,
      I had a bilateral mastectomy with immediate reconstruction. I could not be happier with the outcome. The new "breasts" are small, only so much skin to go around. They fill out my clothes, and I never have to wear a bra again! Keep in mind they have no feeling, and they could not spare my nipples. I had 3D nipples tattooed in the plastic surgeons office. Took about 30 minutes, felt nothing and they are amazing. It has been 14 months and the scars are beginning to fade. I had implants not the flap procedure. There can be more complications with the flap procedure, although the thought of an insurance paid "tummy tuck" was tempting. The surgery is twice as hard since you have two areas to heal.
      I have a work out friend who had a mastectomy with no reconstruction. She is fine with her decision, but does admit to wearing prosthetic, breasts when she is dressed up. Most of the time she goes without. She said they are a little heavy, and can get hot. Whatever you decide, good luck. You can always do reconstruction at a later time. My reasoning was if they are going to take them off, and the surgeons were already in there, and it was going to hurt no matter what, why not start the procedure. Why hurt twice!! You will have spacers for awhile, and will need a second surgery to replace the spacers, but the replacement surgery did not hurt. Remember you have no feeling. A slight ache, for about 24 hours. I hope this helps, and you have several women share their experience.

      Comment
  • mj b Profile

    oncologist told me to stop tamoxifen after 5 years, as my onco type test said my reocurrence is minimal. Has anyone stopped taking tamoxifen. Did you do it gradually, or cold turkey? Side effects?

    Asked by anonymous

    Learning About Breast Cancer
    7 days 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I would discuss the best way to go off of it with your Oncologist. Some medications they recommend weaning yourself off slowly but that may not be the case with Tamoxifen.

      Comment
  • Thumb avatar default

    Post treatment neuropathy and joint pain how long does it last

    Asked by anonymous

    stage_3c Patient
    11 days 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Was your tumor Estrogen+? If so you are probably on a hormone blocker of some sort, what kind depends if you are pre or post menopausal. Some of those meds. can cause joint pain from what I've been told. Everyone's body handles treatments differently. Have you discussed it with your doctor(s)?

      Comment
    • Sue Boston Profile
      anonymous
      Survivor since 2014

      I have been done with treatment for a little over 2 years now, I still have a little bit of neuropathy in my foot and I try to exercise everyday, that really helps with joint pain, especially in my hips.

      2 comments
  • Thumb avatar default

    Removing a section the size of a golf ball is what I'm told, but I don't even have a mass. Just a small collection of malignant calcifications (DCIS) measuring approx. 1.6cm. And they say Stage 0. So do they really need to take that much?

    Asked by anonymous

    Learning About Breast Cancer
    11 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not a doctor but have read when doing a lumpectomy they also take a margin around the entire area and make sure they get clean margins or otherwise they may have to go back in and remove more. DCIS is a stage 0.

      2 comments
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      100% YES. I too was diagnosed with micro calculations, 1.6cm, stage 0 19 2012. I had 1st surgery and margins weren't clear so I had a 2nd lumpectomy 5 days later. In 2014 mammo detected more calcifications & I ended up getting a double mastectomy with immediate reconstruction. With that being...

      more

      100% YES. I too was diagnosed with micro calculations, 1.6cm, stage 0 19 2012. I had 1st surgery and margins weren't clear so I had a 2nd lumpectomy 5 days later. In 2014 mammo detected more calcifications & I ended up getting a double mastectomy with immediate reconstruction. With that being said I would recommend your Dr take as much as they need to so they can get it all in one shot. No your breast will not look the same but it may prevent you from xtra surgeries

      Comment
  • Thumb avatar default

    I am 14 and my mums being diagnosed and I’m really struggling! Any advice please xx

    Asked by anonymous

    Learning About Breast Cancer
    12 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Just being there for her will help. She will need someone to talk with and even cry if she feels the need to. She will be OK.

      Comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      You might call your local cancer center or hospital and inquire about support groups for family members. If you have a church affiliation they may be able to help steer you in the right direction. Your school guidance counselor may help also. A trusted adult friend is also an option.
      You and...

      more

      You might call your local cancer center or hospital and inquire about support groups for family members. If you have a church affiliation they may be able to help steer you in the right direction. Your school guidance counselor may help also. A trusted adult friend is also an option.
      You and your mom will get thru this. Some days will be tough, but things do get better. Good luck .

      Comment
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